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Evie-Anne's Aventure's

My journey through life.....

Guest Book

Please feel free to write a few word's, which will be wonderfull support for Evie-Anne to see just how many people care, now and as she grow's older.

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Karen Hofmann said on Aug 10, 2013 9:58 PM

Halllo Evie-Anne and family You have a wonderful and very informative site. I learned a lot about you and could see many similarities to my son Anton. I wish you all the best for the future ... Greetings from Germany Karen and Anton

michelle castello said on May 12, 2013 11:01 PM

sorry I missed the fundraiser event, looks as tho u did really well. u are such an amazing little princess and u have a fantastic family who do everything they can to make your life as happy as they can. sending u angel blessings. michelle and family xxx

Jess Mcguire said on Apr 14, 2013 2:41 PM

Hi, You recently visited my facebook page telling me about Evie-Anne and plans for a sensory room. I would love to help make Evie-Anne's wish come true and I will look into it right away :) Best Wishes Jess (Help Jess help others)

Cherilyn aka BabyJsMomma said on Mar 15, 2012 11:52 AM

Thank you for opening your hearts and sharing your amazing story of your sweet little girl. My son Jaydan was diagnosed, three weeks ago 1p36 deletionsyndrome

Jennifer Winiecki said on Feb 8, 2012 7:34 PM

This is a great website! I had always thought Evie-Anne was older than my Wendy, but Wendy was born January 2009. I had never heard that song before and it made me cry! We are all very strong, aren't we? Take good care of her--she's lovely!

Miranda said on Nov 29, 2010 1:53 AM

you will be in our prayers. thank you. i would love to send money to help you. but right now we are struggling. my best firend's duaghter has this same problem and it has taken 1.5 years to get her the specialzed chair. please know you are in our prayers. i send you all love and hope. Love, Miranda

molly said on Nov 7, 2010 9:37 PM

your baby girl is gorgeous. I wish you so much love and luck in your future journey.

lillie said on Sep 26, 2010 10:13 PM

evie ane is gorguss hope she is ok xxx

emma bignell said on Sep 20, 2010 9:05 PM

such a beautiful little girl, you must be so proud of her. the website is amazing michelle. I hope you raise all the money you need for her chair, thinking of you xx

sharon stanley said on Sep 19, 2010 6:24 PM

As a woman who has a little brother with special needs I have seen the hardship that family and those close as well as the sufferer go through. Youa re doing a brillant job hun. Let no one tell you any different.. x

angela said on Sep 19, 2010 6:06 PM

Evie-anne i ran for you yesterday in the Coventry big fun run and it was a amazing experience! i feel lucky to have been able to do for you & the 3 mile run was worth all of the sweat & tears. I have promised your parents that i will continue to help you in any way i can throughout the years as i know the fight for your special support chair is probably just the beginning of the battles we will have to conquer. May God bless u Evie-Anne love angie & family x x x x x x

Samantha Bingham said on Aug 29, 2010 3:47 AM

Your baby girl is gorgeous. I wish you so much love and luck in your future journey.

David Gibson said on Aug 27, 2010 1:07 PM

I've given a small donation; every pound counts. Best wishes David

Ginny Dixon said on Aug 26, 2010 11:08 AM

I am in Switzerland but will do more than my best to do the fun run in Coventry and attend both the Coleshill Hotel and St.Andrews Fundraising events for your beautifull little Princesse ,she and her wonderful parents deserve every effort from everybody that has read this site or knows you and your family as I did when you both helped when I was badly burnt in a chip pan fire and refused help under the new law besause I had been out of the U.K over 10yrs, the children are grown the older ones will remember you both and the overwhelming well mannered 3 loving beautiful kids you had as a young loving couple and perfect parents that everyone admired like myself for your patience,love and care one could never forget you ,I hav'nt spoke to my kids since I tryed to manage the computer after a long absence and found your site by error just 48hrs ago and had not know of your heart breaking plight of your little girl Evie-Anne and my heart bleeds for you all and i hav'nt yet gone to bed and catch up with my kids as I seen on facebook that some links poped up , i dought if the little ones will remember as they all grow up and go their own but today everyone is struggerly to keep their heads above water in this economy everywhere and here is no exception my self included on a minmum pension but I will be with you all and as soon as I have my flight ticket sorted out I'll let you all know and in the meantime I will try to spread the word to some organizations in Geneva and hope they are not too busy with all the flood catrosephy's around the world to hear me out and read this site, however I will donate and be with you for the three events mentioned and later continue to help find sponsors which I know is not easy as i tryed myself while volentry helping the street children in Asia during the winter but always had a negative reply because I was doing it alone for years on my own pocket money and what i saved on heating bills ,food and fags and i GOT BY and came back healthier myself but each year more and more kids needed me and thats when I realised those that were admiring what I had been doing alone for yrs ,backed off, so noway will I stop trying for you and you have this ass and real friends and everyone is doing thier best to help in oneway or anoug ther, sorry my eyes are giving up now so i won't bother to correct my faults,please excuse me and I hope it has'nt turned into franglais..Speak to you soon. love to you all and thanks to all those who supplied and help you with this site,its great, keep it up , it means so much to this truely wonderfull family that I met over 15yrs ago , they were always a roll modele and now thier little girl needs all the help they can get and believe me they deserve it. Ginny 7.30a.m Geneva, Switzerland.

Elaine said on Aug 25, 2010 3:10 PM

First heard about Evie Anne on our PACT blackpool trip,have visited your website today. What a beautiful and brave little girl, we hope you raise the money needed for Evie Annes special chair. We made a small donation. Hope Evie Annes stays well. x

Michelle said on Aug 18, 2010 1:59 PM

I can't send you any money as myself and family are struggling financially but I wanted to send you hope, prayers and love, your little girl is gorgeous. Much love Michelle xxx

Diane said on Aug 14, 2010 0:10 AM

lovely site michelle, evie-anne is beautiful, you and mark are fantastic parents for such a special little girl.xxxxxxxx

michelle mcilkenny said on Aug 11, 2010 9:55 PM

This website is fantastic you are going to make such a difference to other peoples lives with the information you are kindly sharing. You are an amazing family and have such an amazing daughter. My love to you all xxxxxxxxxx

charl said on Aug 10, 2010 6:00 AM

what a beautiful little girl, i hope your very proud parents im sorry i cannot phisically do anything to help Evie-Ann, it hurts me inside to see bad things happen to such loving, beautiful people. all my love and prayers be with you! xxx

Shelly said on Aug 8, 2010 3:41 PM

Your daughter, Evie-Marie, is beautiful -- my prayers are with you and your family!!

Christine said on Aug 8, 2010 6:22 AM

Love and prayers for yor precious little girl. I came to your site through a link posted by the Fighting Epilepsy Foundation on Facebook. Wishing her health and happiness.

Michelle Castello said on Aug 6, 2010 11:14 AM

u have set up a wonderful site and u have a gorgeous daughtger. im up for any sort of help or support u need x

sianne said on Aug 5, 2010 0:18 AM

What a lovely website. You are doing a wonderfl thing, not just for evie-anne but all the other children out there who are currently undiagnosed. She is a very lucky little girl to have such caring and wonderful parents such as you.

christine said on Aug 5, 2010 0:17 AM

She's gorgeous.

michelle smith said on Aug 1, 2010 5:30 PM

you are beaufull litle gril enjoy your life and very proud off you

Alison jones said on Aug 1, 2010 7:06 AM

God only gives special angels to special parents and thats what u are x sorry so far away but in our thoughts and prayers x

denise bevan,evie-annes aunty x said on Aug 1, 2010 2:49 AM

so proud of u shell and mark, u have shown everyone how much love you have for evie-anne.she as the love that most kids would love to reach out her new web site it so touching,well day she will be old and read all the messages that people have sent her and she will know how much she is loved x xkeep up the hard work u have done with her. love aunty denise x x x x

kerry peel said on Aug 1, 2010 1:01 AM

U've done well with his website michelle it looks fantastic, and all the support and help you'll got from it will be a big help for out little princess..

Ana-Alicia Bryant said on Jul 31, 2010 9:53 PM

I love this purple/butterfly website & I think it is shows Evie-Ann really well; she looks so fragile but she is a fighter. Carry on the amazing work you do and I hope deep in my heart that Evie-Ann starts getting more help with her problems & you start getting answers so that your special little girl can grow & control the problems she faces everyday - you are blessed. Thinking of you. X

julie perks said on Jul 31, 2010 2:09 PM

michelle and mark you must be so proud of tour little angel the web site is just perfect i had goose pimples all the way through it just remember to keep strong and im sure she'll thrive just of the love and effection you both give her xxxxx

julie jones said on Jul 31, 2010 1:31 PM

what a lovely site u shud be very proud of what u have done here and will give u every bit of help and support i can

Perri Peel (brother) said on Jul 30, 2010 2:32 PM

Love you Evie-Anne.

jeremyfathers said on Jul 27, 2010 10:01 PM

We pray for Evie-Anne, and for you as a family each morning during our Morning Prayers (0900-0930 hrs) at St. Andrew's Church. Yours Jed

Nicole Holland and Chantelle Deighton said on Jul 27, 2010 9:57 PM

Evie-Anne is a beautiful little girl. We loved yours nd Evie's story, we look forward to hearing about her progress. You are doing a brilliant job and we are proud of you and the family. Evie-Ann is a very lucky little girl to have you as a mom. Love you all xxx

Hellie said on Jul 27, 2010 4:08 PM

Beautiful site. Evie Anne truly is a precocious and Adorable baby girl. Best wishes to all of you.

Lisa Strachan said on Jul 27, 2010 1:56 AM

Wow....for once in my life i'me lost for words. Heart wrenching and beautiful is all i want to say. The song choice bought a tear to my eye Michelle. Your determination and resilience is inspiring and puts all our everyday problems into perspective. I shall follow Evie-Annes story and look forward to reading about her progress. x x x x

angela said on Jul 27, 2010 1:32 AM

Brilliant site, great song choice, very informative as well as emotional. im proud of u as a friend shell this is fantastic! As always ....i say stay as strong as u are you have a very special lil girl xx

Elaine Dunne said on Jul 27, 2010 0:28 AM

Well done Michelle, this is beautiful, as is Evie Anne. I hope that you get answers soon, thinking of you and all the family, best wishes from Ireland xxx

Nikki Campbell said on Jul 26, 2010 4:49 PM

Such a beautiful website for such a beautiful special little girl. mark an michelle ur so blessed to hav an amazing little person in ur lives ( An mine 2 as shes my likkle cousin :) ) x x x

michele warde said on Jul 26, 2010 4:19 PM

First of all Michelle, thank you so much for sharing your story i believe that obstacles are put in our way so that we can discover the magnitude & strength we possess in life,with one step at a time great things can happen, especially if more people are taking those steps with you to support you along the way.You and your family are an inspiration to us all, the website is beautiful & very touching too. Evie-Anne is a beautiful little angel,such a strong & courageous baby too, i am a mum of three & i was deeply touched by your story i hope that she soon starts to progress , i wish i had the power to click my fingers & that everything will we alright for Evie-Anne, sadly i cannot but i am sure that will all the love & care she recieves she will get there bless her,no matter how hard it seems at times,NEVER give up because one day in your life you will thank yourself for not giving up we are all behind you all the best & thank you once again Michele & family xxx

charlie crawford said on Jul 26, 2010 2:03 PM

amazing site chelle xx your doing a wonderful job both you mark and the kids xxx

Perry Peel (Brother) said on Jul 26, 2010 1:55 PM

My little sister is the best thing that has ever happened to us! we love her loads she's the one who makes us smile when were down! <3 you EVIE-ANNE sooooo much :)

Margaret Barrett said on Jul 26, 2010 3:37 AM

Well done Michelle for sharing your beautiful baby girl's story. I hope that over the coming months we will be seeing news of her progress and achievements. Whatever problems she may have make sure you enjoy every minute of her precious baby days - they will be gone in a flash and can never be recaptured.

Emma Walsh said on Jul 26, 2010 3:20 AM

What a beautiful page with some truely beautiful pictures of your georgeous little girl, my little girl is called Evie-Jayne so i love her little name. Thankyou for sharing her story and yours with us. xxxx

Angela Locke (Ireland) said on Jul 25, 2010 10:36 PM

Absolutely beautiful, both the site and your little one. Again, I am the mum of a child with some extra challenges (my boy has Downs and has had two heart surgeries) and I would also like to tell you that you are most certainly not alone. You should check out the Facebook page suggested by Special Needs Parents Association in Ireland. Great bunch of people. It is always tough raising a kid even without extra worries but you tell your story so openly and honestly and I really want to hear more! Thank you for so generously sharing it. XXX

Special Needs Parents Association (Ireland) said on Jul 25, 2010 9:35 PM

Well done Michelle , We are with you all the way and there are lots of parents on our FB page to chat to

susan hunter said on Jul 25, 2010 8:19 PM

Love this Shell, make sure u keep us informed, this way we can see how u are all doin, she's a little princess, such a special girl, great site too hun xxxx

Marcelle Kennedy said on Jul 25, 2010 7:53 PM

Beautiful site Michelle,a special mommy and daddy for a special little girl,.xxxx

shanteae (sister) said on Jul 25, 2010 7:56 PM

evie anne - i love you so much, and i love you too mom you are so strong and i really hope i am as strong aas you one day xx

Chirs Reeves said on Jul 25, 2010 7:50 PM

A beautiful website Michelle, Evie-Anne is a beautiful and courageous little girl. Keep doing what your doing my thoughts and prayers are with you. xxxx

auntie tracey blevins said on Jul 25, 2010 6:58 PM

my heart is with all the family i had lost my little angle to edwards at 6.1 and will never feel so much love as i did for her i am glad u have set up this web site because our little ones go threw so much noone really understands how hard things get so it nice to hear everyomes thoughts all my love and hugs for evie-anne and my sisters family she will always b loved lots as i say they r not children with problems but sent to use because we were choosen to love them and hold them

ruthie belavic galvin said on Jul 25, 2010 6:26 PM

My heart aches for you. 31 years ago I went through testing with my daughter for seizures, feeding problems, hypotonia, etc. Took 5 years for a diagnosis. But medicine has come along way in 30 years.The unknown is the hardest. You sound like a great and exceptional mom. That's why God chose Evie for you.

Astrid said on Jul 25, 2010 5:53 PM

A beautiful tribute! Thank you for taking the time to do it. Love the music :) Take care Love & prayers sent your way

vicki said on Jul 25, 2010 3:57 PM

Bless you for taking the time to do this- Thank you for sharing your Evie-Anne with us all!! I love the music!! How perfect!!! I will keep you and Evie in my prayers!! Remember- You are not on this journey alone!!! Love you, honey! Thanks for the tears!!! This is just so touching- What a beautiful thing for a mother to do for her child!!

Belinda McDonald said on Jul 25, 2010 3:47 PM

Michelle, from one mother of a special needs child to another, no-one really knows the path we walk. Its nice to share with people in similar situations with us. Your daughters page is beautiful and I just love the song you have linked to the site. Its just beautiful. Keep going strong and know that I am only an email away should you ever need me. Take care and hug that gorgeous little girl of yours.

jeanette said on Jul 25, 2010 3:37 PM

awwww so beautiful ya have me crying xxxxxxxxxxxxx

Amie said on Jul 25, 2010 3:36 AM

Evie is a beautiful little girl! Her story touched my heart and brought me to tears. My daughter Megan has a rare genetic disorder that took 13 months to find. So I know how you feel. Hang in there! My prayers are with you. Send my love to your precious little angel. Great job on the web-site. It is beautiful.

Chloe Hartley said on Jul 25, 2010 3:31 AM

Evie - anne My BAby Cousin i love you soo much <3

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